People's experiences of health and illness

Research on people's experiences of health and illness

The Health Experiences Research Group at the University of Oxford has developed a unique and award-winning website of over 60 modules on people’s experiences of health and illness (www.healthtalkonline.org and www.youthhealthtalk.org). The St. Mary’s research team is developing the first module of a Canadian collection of people’s experiences of health and illness for a variety of topics – the first of which will be on experiences of caregiving. The St. Mary’s research team has been trained by the research group at Oxford in the application of rigorous and systematic qualitative research methods; each module will include a ‘maximum variation’ sample of participants from across Canada. The www.healthexperiences.ca / www.experiencessante.ca sites are believed to be unique in Canada in the field of patient and healthcare communication. As such it has great potential for providing a reliable source of information and support for caregivers, patients, family and friends as well as excellent material to be used for education and training of healthcare professionals. 

Investigators: Susan Law
 

List of projects

Experiences of family caregiving for adults with chronic physical illness

Principal Investigator: Susan Law
Funding agency: St. Mary’s Hospital Foundation
Inclusive years: 2011-2012
Available materials: Executive Summary PDF
                              Key Implications PDF